The ADAP Advocacy Association is pleased to share the following panelist biographies.
Khadijah I. Abdullah ¦ Guy Anthony
¦ Ken Bargar ¦ ShaTerra
Johnson-Fairley ¦ Darnell Ferrell ¦
Edward Hamilton ¦ Michael J. Harbour ¦ Kathie M. Hiers ¦ Achim Howard ¦ Lynne Maureen Hurdle ¦ Riley Johnson ¦ Diana Jordan
Joyce Turner-Keller ¦ Scott A. Kramer ¦ Brandon M. Macsata ¦ Maria Mejia ¦ Joan M. McGovern ¦ Joshua Middleton
Amy Niles ¦ Theresa Nowlin ¦ David Pable ¦ TJ Parker ¦ Elizabeth Paukstis ¦ Glen Pietrandoni ¦ Britten Pund
Jack Rollins ¦ Michael Shankle ¦ Robert Skinner ¦ Lee Storrow ¦ Jason L. Walker ¦ Joey Wynn ¦ A. Toni Young
Khadijah is an HIV/AIDS Activist, Entrepreneur, Writer and Thinker.
In 2012, Khadijah founded Reaching All HIV+ Muslims In America (RAHMA). A nonprofit organization located in Washington, DC with a mission to address HIV/AIDS in the American Muslim community through Education, Advocacy and Empowerment.
As RAHMAs President, she has overseen and built crucial programs to tackle this issue, and continues to look for innovative and powerful ways to make a greater impact and eliminate stigma.
To learn more about RAHMA, please visit www.haverahma.org.
Guy Anthony is Co-Founder and President of Black, Gifted & Whole who is a well-respected HIV/AIDS activist, community leader, and author. Diagnosed with HIV as a teen, Guy has dedicated his adult life to the pursuit of neutralizing global HIV/Aids-related stigmas. He released Pos(+)tively Beautiful: Affirmations, Advocacy & Advice on World AIDS Day in 2012. This collection of inspiring narratives, raw imagery, and affirming anecdotes have earned Guy much acclaim, including being named one of the top 100 HIV prevention leaders under 30 by POZ Magazine and as one of the top 100 Black LGBTQ/SGL Emerging Leaders to Watch by National Black Justice Coalition.
Guy served as a Program Manager/Coordinator for the Treatment Adherence program at Us Helping Us, a local AIDS service organization serving Black communities in the Washington, DC area for two years. In his role at US Helping Us, Guy worked with newly diagnosed Black gay men to help them come to terms with their status, navigate the complex health care system so they can access care, and develop plans for them to adhere to their treatment regimen and achieve viral suppression. Guy also served on Washington, DCs Metropolitan Ryan White Planning Council, overseeing millions of dollars in HIV funding for the city for two terms and is a regular contributor to AIDS.gov and POZ.com. Guy serves as a brand ambassador to ViiV Healthcare, one of the countrys largest pharmaceutical companies. He is the President/CEO the Black, Gifted & Whole Foundation, a two-fold intermediary organization that provides scholarships to Black gay men attending Historically Black Colleges & Universities.
Guy is currently focused on providing mentorship and financial assistance to the 6 Black, Gifted & Whole HBCU ambassadors from across the country.
Ken Bargar has been involved in HIV/AIDS prevention and patient care for over 30 years. Ken's passions teaching youth the history of the disease, and getting them involved in taking up the mantle for HIV prevention.
His current and past affiliations include: Co-chair and Co-founder of Florida HIV/AIDS Advocacy Network (FHAAN-present); Prevention Community Co-chair for State of FL (present); Medical Monitoring Project FL CAB Chair (present); Chairman of the Board for NorthEast FL AIDS Network (present); Member of the Educational Review Panel for DOH (present); Co-chair of Consumer Advisory Board for DOH (past); President of Gainesville Area AIDS Project (past); ADAP Workgroup Chair for FL DOH (past); and Southern AIDS Coalition founding member.
Sha'Terra Johnson-Fairley completed her Bachelors (2009) and Masters (2011) of Social Work at Stephen F. Austin State University, Nacogdoches, Texas. During her academic career, her focus was on HIV/AIDS in rural areas, to which she interned at Health Horizons of East Texas (currently Brown Family Health Center) for both her BSW and MSW field placements. After leaving college she worked for AIDS Foundation Houston (2012) as a Life Skills Housing Case Manager for First Responders Housing Program for a year.
Looking for a challenge, ShaTerra accepted a position the Houston Regional HIV/AIDS Resource Group, Inc. (The Resource Group) as the Health Planner for Eastern Texas. In this position she conducts community meetings to gain community input on HIV care funding, care and prevention activities on the local and state level, HIV Standards of Care and any immerging needs and issue in the healthcare system that could impact people living with HIV/AIDS in the 51-county region. In 2013, ShaTerra started a partnership with SFASU Social of Social Work Rural Research Center and The Resource Group to conduct rural HIV research in East Texas.
In 2015, ShaTerra developed a Social Work Internship Program at TRG to assist in cultivating social work students in the field. In 2016, ShaTerra was charged to lead the ADAP Enrollment Workers Project (AEWP) for Eastern Texas (51-counties). The AEWP model is to ensure that every Ryan White clinical site in the region have a full time employee dedicated to ADAP applications, as well as, a Regional Liaison to provide capacity development and ongoing technical assistance. This project is funded by the Texas Department of Health Service State Services-Rebate funding stream.
She has created, participated and lead many HIV community groups such as the Texas Black Womens Initiative, African State of Emergency Task Force, Youth Task Force, Fort Bend County HIV/STD Coalition, Just A Touch of H.EL.P., Inc., Ryan White Planning Council, Houston Community Prevention Group, HIV Youth Linkage To Care Task Force, Serving the Recently Released and Incarcerated Network and Texas HIV Syndicate and committees.
Her commitment to the HIV field is unwavering and it is exhibited in the continuous work displayed in the community.
Darnell currently serves as an Early Intervention Services (EIS), Youth Adult Case Manager with Williams & Associates based out of St. Louis, Missouri. Darnell brings over six years of experience to his current position at Williams & Associates, a community based organization that provides preventive health education, disease prevention, health promotion, and care services that address the health disparities of minorities in the St. Louis Bi-State region, with particular regard to African Americans.
In his current position as EIS Youth Case Manager, he provides medical case management for young adults between the ages of 24-30 years of age. A range of client-centered services that links clients with health care, psychosocial and other services to insure timely, coordinated access to medically appropriate levels of health and support services, continuity of care, ongoing assessment of the clients and other family members needs and personal support systems, and inpatient case management that prevents unnecessary hospitalization or that expedite discharge, as medically appropriate, from inpatient facilities
Darnell continues to represent and advocate on behalf of those living with HIV as it relates to the provision of high quality stigma-free HIV care and services under the Ryan White Program. Darnell's mission is to help impact the lives of people living with HIV and educate the masses who are still ignorant about the disease. Darnell has been living with HIV since 1999.
RMGO Specialty Pharmacist for Walgreens currently. Graduate of VCU/MCV School of Pharmacy in 1992. Spent about 10 years in the coal fields of Virginia and Eastern Tennessee providing Pharmacy services focused on Hospital and Long Term Care in underserved areas.
Started with Walgreens in 2004 back in Richmond where I grew up. Grabbed the opportunity to focus on HIV patients and services provided to them with Walgreens around 2009 and have never looked back. I currently manage our Community Specialty site located in downtown Richmond.
My wife and I reside in Ashland Virginia with our 4 Children and enjoy doing just about anything they challenge us to do.
Eddie is currently the Executive Director of the ADAP Educational Initiative, an all-volunteer project of SAVE ADAP, INC. ADAPEI focuses on HIV Public Policy, grassroots advocacy and all issues related to the Ryan White Programs and primarily the AIDS Drug Assistance Programs.
He is currently serves as a member of Columbus, Ohios TGA (Ryan White Part A Planning Body), Columbus HIV Prevention Planning Group and provides grassroots input to Ohios Statewide Ryan White Part B Advisory Group. From 2000-2001, he was also on the Board of Directors for the Provincetown AIDS Support Group that had coordinated the merger of 3 AIDS service organizations on Cape Cod to what is now the AIDS Support Group of Cape Cod.
He is also a student pursuing his Masters of Business Administration Degree with a concentration in Health Care Administration at Ohio University after completing his Masters Degree in Legal Sciences at West Virginia University. Eddie brings the grassroots stakeholders perspective to the intersection of grassroots advocacy and Federal / State HIV policy.
Dr. Michael Harbour is currently the Global Director for Infectious Diseases within the Office of the Chief Patient Officer at Merck. He previously served as the US Director of Medical Affairs and Strategy Lead for HIV and HCV.
Prior to joining Merck, he was Associate Clinical Professor of Medicine at Stanford University School of Medicine where he was a clinician-researcher in HIV medicine. He attended Georgetown University School of Medicine and completed his internal medicine training at Boston City Hospital. He then joined the clinical faculty at Harvard Medical School. He is currently completing a Master's degree in Public Health at University California at Berkeley.
He practices HIV medicine as a volunteer at a Stanford affiliated clinic and lectures at Stanford University School of Medicine. Dr. Harbour also serves on the Merck for Mothers sepsis prevention initiative.
Achim Jeremiah Howard is a leader, mentor, father figure, advocate, activist for HIV, Trans and community issues. He was born and raised in Washington, DC. He is a member of Alpha Omega Kappa Fraternity, board of directors for Whitman Walker Health, member of Positively Trans, founder of DC TransMen Rising, inducted into the Heroes Exhibit, and 1st Trans Minister at Bethal Christian Church in Washington, DC.
He is a father of 2 beautiful young ladies, and 12 young Transmen. He is self-described as paving the way for others. He helped fight to get Culture Competency in DC, and he is the first Trans individual to be apart of the Union Local 891 Cement Masions, as well as At Capital Paving Inc. He physically transitioned during his 3rd year of being on my job.
His favorite quote is: "We all hold the key to our own destiny it is up to us to turn the key, pish the door open,grab hold to what is yours and keep the door open for others to follow...if you want anything bad enough fight for it. Never give up....Once you claim what's yours...help others get their's too."
Kathie is the Chief Executive Officer of AIDS Alabama, a nonprofit organization that works statewide to provide housing and supportive services to low-income persons with HIV/AIDS as well as education, outreach and testing.
AIDS Alabama has subcontracts with the other nine AIDS Service Organizations and clinics in the state of Alabama to provide services to all 67 counties.
Kathie has been with AIDS Alabama since January 2001. Prior to that, she was the Executive Director of Mobile AIDS Support Services and the founder of the Lee Simmons Fund for People Living with AIDS in Mobile, Alabama.
Lynne Maureen Hurdle is a conflict resolution strategist, facilitator, speaker, coach, wife and mom who blends the connection between conflict and culture in to her unique style of engagement. At the age of 17 she experienced a racial bias incident where she was able to escape with her life and limbs intact. She also came away with a clear knowing that somehow she had to be able to do the work of bringing people together to talk about tough issues and finding ways to resolve them.
Transformational Conflict Resolution with a focus on social justice, mediation, leadership, the dynamics and influence of culture along with contemplative practices are at the heart of her work these days. She engages her clients with the infusion of creative processes designed to create dialogue and teach skills that can be used in the workplace and everyday life.
Her belief that helping people transform their lives begins with transforming your own, led to her well received 2012 TEDxWomen talk entitled "The Weight of Hate." You can find practical strategies for handling every day conflicts in her Blog: From Where I Sit at www.lynnemaureenhurdle.com and check her out on Psychology Today www.psychologytoday/blog/breakingculture.
Riley Johnson is a co-founder and the Executive Director of RAD Remedy, a national nonprofit tasked with improving access to quality care for trans, gender non-conforming, intersex, and queer people. Prior to his work with RAD, Riley served for twelve years as an independent consultant and educator, improving trans-related health access in systems across the Midwest, while concurrently working full-time as a university administrator.
Riley also currently serves as the Chapter Coordinator for Sex Workers Outreach Project USA, and was deeply honored to have been named to the Trans 100, Windy City Times' 30 Under 30, and a recipient of the Chicago Women's Health Center's Golden Speculum Award for his work as a community partner with their groundbreaking Trans Greater Access Project.
In October 2016, Riley moved to Saint Petersburg, Florida and now serves as a stay at home papa to his two children, Eamon and Finnian. Riley finds great joy in helping folks get what they need, the continued expansion of the RAD database, and in toddler guffaws.
Diana Jordan, RN, MS, ACRN has 28 years of experience providing high quality healthcare services with a focus on HIV/STDs prevention and treatment. She has worked in acute care, public health, community-based and ambulatory outpatient settings serving clients, educating healthcare professionals, and managing systems of care. She currently serves as the Director, Division of Disease Prevention, at Virginia Department of Health.
She is responsible for overseeing multiple state-wide programs and services related to the surveillance, prevention, testing, and treatment of HIV/AIDS, STDs, TB and viral hepatitis with the goal of reducing those diseases and their consequences.
These responsibilities include oversight of epidemiologic surveillance activities (investigations, case follow-up, screening, data management and reporting); treatment and service delivery activities for HIV/STDs, including the AIDS Drug Assistance Program; HIV/STD prevention strategies, including counseling and testing, partner services, and training; and TB contact tracing, screening, treatment, and prevention services.
She manages all operational, technical, administrative, contract and grants management, public health informatics and programmatic activities associated with service delivery.
Archbishop/Dr. Joyce Turner Keller, resides in Baton Rouge, Louisiana where she serves her community with vigor, passion, and love. She is an ordained minister of 53 years, writer, actor, advocate, motivational speaker,and activist.
Dr. Turner Keller is the Founder & Leader of the Travelers of Christ Evangelistic Ministries, Founder and CEO of Aspirations, owner of Positive Diva and Dudes Production.
Scott A. Kramer is a psychotherapist in private practice in New York City working with LGBT clients, with a specialization in gay men and gay men living with HIV. Scott was diagnosed with HIV in 1988 and AIDS in 1995.
He founded and continues to facilitate the popular group, Hi-fIVe: A Support & Discussion Group for Gay Men Living with HIV/AIDS, which began in the summer of 2010.
Scott has facilitated groups at Friends In Deed, presented at conferences across the country, and has served as Chair of LGBT Committee of the National Association of Social Workers, New York City Chapter.
Brandon M. Macsata serves as Managing Partner of The Macsata-Kornegay Group, Inc. - a national political and fundraising consulting firm specializing in grassroots campaigns, media messaging and political fundraising. He is widely recognized for his ability to connect national, state and local stakeholders interested in influencing public policy. In that capacity, Macsata has served as the CEO of the ADAP Advocacy Association since July 2007. In his capacity as CEO, he has successfully assembled a wide spectrum of ADAP stakeholders to re-energize patient advocacy around the AIDS Drug Assistance Program at the national level.
Macsata has extensive experience working with political candidates, national and statewide trade associations, and other corporate entities. In November 2009, Macsata was acknowledged by HIV-Plus Magazine to be amongst the Top 25 LGBT Leaders Fighting HIV/AIDS. First diagnosed as HIV-positive in March 2002, Macsata has dedicated much of his professional and personal life advocating for persons living with HIV/AIDS. From November 2003 to March 2006, he authored a weekly news column on national HIV-related stories for The Weekly News in Miami, Florida. He is also a former ADAP recipient.
At the age of 27, Macsata was the youngest Executive Director of a national trade association; he managed the American Congress of Community Support & Employment Services (ACCSES) from 2000-2003, a national trade association representing the interests of community, non-profit agencies providing supports and services to persons with disabilities. Prior to moving to Washington, DC in 2000, he opened a 100-bed assisted living care facility in Wilmington, North Carolina. Serving as the facilitys assistant administrator, Macsata worked closely with community leaders and state agencies to advocate for seniors. Macsata has advised candidates for political office, and has also run for office himself at the local and national levels. He is a graduate of the University of North Carolina at Wilmington, where he graduated Cum Laude with a Bachelor of Arts in political science. In April 2009, UNCW awarded Macsata - and his business partner - the Political Science Departments Outstanding Political Science Graduate award in recognition for their accomplishments.
Maria is the co-author of the book From a Warriors Passion and Pain, a real life account of her 28-year battle with HIV and AIDS. She is currently the co-chair of the Women and Minorities Outreach for the Dab the AIDS bear project. Maria is The CDCs AMbassador for the campaign, Lets Stop HIV Together Detengamos el VIH juntos for the Center for Disease Control and an ambassador for the The Stigma Project." She is also the Global AMbassador for The well project and an Ambassador for the ongoing campaign for Greater than AIDS (IPV, Women, HIV and Women) Empowered.
Diagnosed with HIV in 1991 and infected in 1988 at the age of 16, Maria began a long journey finding hope, pride and passion in an undereducated society unprepared to deal with the growing epidemic of HIV and AIDS. After ten years without treatment Maria found herself at a crossroads. She could begin medical treatment or continue to slide towards death. Thankfully she chose to live and to fight for more than just her own health.
Maria immersed herself in HIV/AIDS education in the year 1999 and became a powerful Human Rights Activist and HIV, LGBT advocate for education, treatment, testing and prevention. She has been featured in magazines, billboards, TV, radio as well as national and international conventions. Maria has been a part of four documentaries to help raise HIV awareness.
She is a volunteer for the Red Cross, an HIV educator and tester for Jackson Memorial Hospital and a motivational speaker all over the globe and an HIV consultant and a member of several digital advisory boards: Janssen Pharmaceuticals from Johnson & Johnson Digital advisory board and Spokesperson, community advisory board for "The well project" and mentors hundreds of women all over the globe to become advocates and helps millions around the world with Education and Stigma.
During a successful 30 year career at a major global financial services company, Joan began to feel the "nudge" to pursue a deeper life's calling. The experiences she encountered were preparing her spirit for her true vocation....attending to the spiritual needs of others.
Upon obtaining certifications to minister to individuals at the parish and diocesan levels, Joan retired and focused her journey on Ignatian spirituality wherein she was commissioned in the specialized ministry of spiritual direction.
She currently holds the position of Director of Mission Advancement at a Long Island, NY retreat center and is pursuing a Master's degree in Theology, from St. Joseph's Seminary and College.
Joshua is a 27 year old male from Southern California and was diagnosed with HIV in 2012. Following his diagnosis Joshua became involved in patient advocacy and has dedicated his life to raising awareness about HIV/Mental Health Awareness through the promotion of education and prevention on both the local and national level through: motivational speaking, blogging, and leadership in his non-profit organization, Pozitive Hope, Inc.
Furthermore, he is a born again Christian who has used his life experiences to help bridge the all too often existent gap between the HIV and Faith communities. Currently a full time college student working towards a doctorate in clinical psychology and an aspiring commercial airline pilot, Joshua believes the sky is the limit and seeks to inspire hope to all within the community he serves.
Amy Niles is Vice President of External Affairs for the Patient Access Network (PAN) Foundation. The PAN Foundation is a national nonprofit that provides financial assistance to patients to cover out-of-pocket costs associated with their prescriptions medications. In this capacity, Amy develops alliances with national patient advocacy organizations to help address patients unmet needs, challenges and opportunities associated with access to care. She also oversees PANs public advocacy outreach and initiatives.
Prior to joining PAN, Amy led outreach programs for Together Rx Access, a prescription savings program for the uninsured. She collaborated with national and state organizations, leveraging their programs and communications to create awareness about Together Rx Access. Prior to Together Rx Access, Amy was President and CEO of the National Womens Health Resource Center (NWHRC), now known as HealthyWomen, for well over a decade. Serving as an independent clearinghouse for womens health information, Amy grew the organization from an idea to a national resource.
Amy began her career in health care administration in hospitals in New York and Washington, DC. She holds a masters degree in business administration from Baruch College, City University of New York. She graduated the University of Rochester with an undergraduate degree in biology.
Theresa Nowlin, 54 years old, tested HIV positive in 1986, I was 24 years old. I contracted HIV through unprotected sex and or IV drug use. I didn't start care until I got pregnant in 1991 Mark was born September 3,1992 by the time he was 18 months old he tested HIV negative then in 1993 I got pregnant again Sean was born April 11,1994. By the time he was 6 months old he tested HIV negative. During my pregnancy with Mark they were unsure about giving me HIV meds then when I was pregnant with Sean CDC cleared the way for pregnant women to take AZT I was on AZT during my pregnancy and had a IV drip during delivery with my son Sean.
Sean was on AZT for the first six weeks of his life I stopped taking the AZT because of the side effects. Due to the harshness of medications back in the 90s I refused to take medication and 2006 I had 3 Tcells and my viral load was in the millions I had a nervous break down and a stroke and ended up in the hospital in a coma during my hospital stay they put me on a Atripla. I got out of the nursing home May 17, 2007 I was homeless in a wheelchair I didn't know if I was ever going to get better.
If it wasn't for Peer support and all of those who cared I don't know if I would be here today. I wasn't always adherence to my medication I didn't understand the importance of keeping a certain level in my blood it wasn't until I did a study at Fenway health that had a component with counseling that gave me suggestions on how to remind myself to take my meds . Today I am in full compliance with taking my medication and making sure I go to all my doctors appointments. Today I have a team that helps me stay on track and health.
David Pable , Was Diagnosed with HIV in 2003 and receiving services thru the ADAP program in South Carolina for most of the last 15 years. David began getting involved with HIV advocacy first directly with the Roper St. Francis Ryan White clinic of Charleston where he was also a patient, and also Chaired their Community Advisory Board for two years. David also served as a Co-Chair of the Charleston area World AIDS Day committee. David then became interested in being more involved in HIV and was encouraged to apply to be a member of the South Carolina HIV Planning council in 2012.
David is presently still a voting member and chaired the HIV Planning Councils needs assessment committee for 3 years, and worked with the group to develop a new tool help bring patients back into care around South Carolina. David has also been a member of the South Carolina HIV Task Force as well as chair of the board in 2016of SCHTF and involved in AIDSWatch for the past 4 years as state coordinator As well as attended HIV is Not a CRIME national training.
TJ is a second generation pharmacist and holds a Doctor of Pharmacy from Massachusetts College of Pharmacy and Health Sciences.
He was named one of Forbes' '30 Under 30' in Healthcare in 2015 and one of Incs "Most Dynamic Young CEOs in America" in 2016.
Elizabeth Paukstis, M.A., J.D., is Public Policy Director at the National Viral Hepatitis Roundtable. Before joining NVHR, Elizabeth worked at the ACLU National Prison Project to improve access to medical and mental health care for inmates.
Elizabeth has also worked in the Office of Senator Richard Durbin, the U.S. Department of Justice's Civil Rights Division, and the American Foundation for AIDS Research.
She earned her J.D. from Georgetown University Law Center, her Master's from the University of Texas at Austin, and her Bachelor's from New York University.
Glen Pietrandoni, R.Ph, is a 1979 graduate of the St. Louis College of Pharmacy. After a decade as an owner of a small chain of independent pharmacies in Chicago, he joined Walgreens as a store manager and pharmacist at various locations throughout the Chicago area.
With the advent of early HIV therapy in the late 1980s, Glen addressed the needs of this community by establishing a relationship with a nearby physician's practice devoted to treating HIV patients and by understanding the unique needs of this population. In 1996, Walgreens opened its first HIV-focused pharmacy inside the Howard Brown Health Center, the Midwest's largest gay and lesbian healthcare center, which provides primary patient care, case management, social services, and research under one roof. Glen served as Pharmacy Manager for the Walgreens site at Howard Brown Health Center until 2003. As Walgreens expanded its HIV services and locations, Glen moved into the corporate office to manage nationwide HIV and hepatitis patient programs and services throughout the company's enterprise of retail, specialty, and other business units.
Glen has received numerous awards and recognition for his work in HIV and community pharmacy, including Pharmacist of the Year from Drug Topics Magazine in 1998 and 1999, and Volunteer of the Year for Test Positive Aware in 2002. Glen is a member of the Association of Nurses in AIDS Care, the American Academy of HIV Medicine, the Gay and Lesbian Medical Association, and supports numerous AIDS service organizations across the country.
Britten Pund is a Manager with the Health Care Access Program at the National Alliance of State and Territorial AIDS Directors (NASTAD).
Ms. Pund has been with NASTAD since 2006 and is responsible for the research and production of the National ADAP Monitoring Project and ADAP Watch.
Ms. Pund provides support for NASTAD's HRSA Cooperative agreement on the topic of ADAP programmatic management, including formulary and waiting list management, other cost-containment, and cost-effectiveness.
Ms. Pund received her Bachelor's degree from Elon University in North Carolina.
Jack Rollins joined NAMD in April 2014. He is responsible for the associations policy work, including analysis of legislation and regulations impacting the Medicaid program, convening Medicaid Directors and their staffs to identify and build consensus around policy objectives, and articulating members consensus positions via comment letters and other communications to federal policymakers and Medicaid stakeholders. In his time at NAMD, Jack has focused specifically on the areas of Medicaid prescription drug coverage, managed care, and long-term services and supports.
Prior to joining NAMD, Jack interned at a safety net hospital association, a small lobbying firm specializing in healthcare issues, and performed policy work for a nonprofit organization of women state legislators.
Jack received an Masters of Pubic Health focused on health policy from the George Washington University and a B.A. in philosophy and government from the College of William and Mary.
Michael D. Shankle, MPH, HealthHIV's Senior Director of Capacity Building, has over 21 years of experience in HIV prevention and care delivery, public health program management and development, outcomes performance improvement, and capacity building. As HealthHIV's Senior Director of Capacity Building, Michael is responsible for leading the organization's day-to-day capacity building, technical assistance, and curriculum development efforts. He develops strategic capacity building plans to address the needs of community based organizations, health departments, clinical providers, fiscal administrators, and medically underserved communities.
He has also built coalitions and developed strategic public health practice partnerships at the local, state, and national levels. Additionally, Michael serves as the Project Director for a multisite, national medication therapy management demonstration project integrating community health centers and community pharmacists, as well as a national technical assistance center charged with building the capacity of health department and community partners to respond to the comprehensive HIV prevention, treatment, behavioral health, and social service needs of MSM of Color at risk for and living with HIV. Prior to joining HealthHIV, Michael began his career as a research specialist with the University of Pittsburgh's Graduate School of Public Health in the Department of Infectious Diseases and Microbiology, where he combined his experience of behavioral health sciences, health research, and technology, to develop online HIV/STI interventions.
While there, he implemented programming that facilitated parity, inclusion, and representation of high-risk, sexually active young adults in HIV community planning processes. In 2006, Shankle produced and published the first public health textbook dedicated exclusively to LGBT Health entitled, "The Handbook of Lesbian, Gay, Bisexual, and Transgender Public Health: A Practitioner's Guide to Service." Michael joined the AIDS Action Committee of Massachusetts in 2006, first as Director of The MALE Center (Boston's gay and bisexual men's community health and wellness center), and then as Director of Gay, Lesbian, Bisexual, and Transgender Health Services.
Bob learned about his HIV status when he was diagnosed with AIDS on his 50th birthday June 26th, 2000, though his seroconversion dates to the '90s. In 2000, he moved from Ft. Lauderdale, Florida to Corvallis, Oregon, where he started volunteering at Valley AIDS Information Network Inc. (VAIN) in Corvallis. Today, he's VAIN's president and CEO.
Along the way, Bob developed a passion for public speaking and HIV advocacy, participating in national conferences and has served on Oregon's State HIV Planning as the community co-chair. In 2007, through Stanford University, he was certified as a master trainer for the chronic disease self-management program and Living Well With HIV/AIDS, a similar program designed for people with HIV/AIDS. Bob is also the on-site dean of Strength for the Journey, an HIV-positive retreat where he met his partner of 15 years.
Lee Storrow has been the North Carolina AIDS Action Networks Executive Director since 2014. Before coming to NCAAN, Lee was the managing director of the North Carolina Alliance for Health, a coalition that advocates for policies that promote wellness and reduce the impact of tobacco and obesity.
Lee has also worked at Ipas, a global non-governmental organization that works to increase womens ability to exercise their sexual and reproductive rights. Lee was selected to participate in the inaugural class of the Human Rights Campaigns 360 HIV Fellowship in 2016 and serves on the board of directors of the National AIDS Housing Coalition.
Lee was elected to the Chapel Hill Town Council in 2011 and served on the council for four years. He currently serves on the Durham Technical Community College Board of Trustees. He is a native of Asheville, NC and a graduate of the University of North Carolina at Chapel Hill.
Jason L. Walker is a the HIV/AIDS community organizer at VOCAL New York where he also serves as the Coordinator of the New York City AIDS Housing Advocacy Network. Since joining VOCALs team in 2013, Jason has helped bring together thousands of low-income people in living with HIV/AIDS to improve local laws and policies around access to affordable housing and to ensure the full implementation of New York State's Blueprint to End the AIDS Epidemic.
In 2015, he helped win an eight-year battle to ensure that formerly homeless New Yorkers living with AIDS wouldnt have to pay more than 30 percent of their income toward their rent and in 2016, Jason helped to score a second major victory that expanded those policies and lifesaving benefits to all New York City residents living with HIV in a campaign that is commonly referred to as HASA for All. Having his roots in organizing as a youth, Jason created and oversees VOCALs first youth organizing and leadership development program, known as Queerocracy, which works with homeless and street involved queer youth to develop and execute policy advocacy strategies and direct actions to ensure housing for LGBTQ homeless youth.
Thanks to his work, Jason has helped more than 15,000 New Yorkers from the HIV and LGBTQ youth communities escape homelessness, poverty, and housing instability. Jason's leadership has been recognized by the Kentucky Alliance Against Racist and Political Repression, POZ Magazines 2014 Top 100 List, the National Black Justice Coalition as a Black LGBTQ/SGL Emerging Leaders to Watch, and he is the 2016 recipient of the People for the American Way Foundations Norman Lear Award, and the NYC Black Gay Pride's Joseph Jefferson Award.
Joey Wynn has made a career in HIV advocacy, public policy and working in a variety of public health settings over the course of his 22 years in the state of Florida. In 1994, he was involved in the start up of the first Ryan White Outpatient HIV Program (SIS) Dept. at Mercy Hospital in Miami, FL. In 1996 he joined Florida AIDS Action (FLAAC), based in North Miami, it was a statewide advocacy agency providing medical treatment information & education for patients and physicians; with a focus on increasing awareness for funding from the State Legislature for HIV related services, especially the AIDS Insurance Continuation Program by bringing in a multi-bus tour with patients from around the state to the Capitol, resulting in the first million dollars of state funding earmarked for the AICP program as well as additional funding for other HIV projects.
Then he served for 5 years as the Ryan White Patient Care Administrator for the Broward County Health Department's AIDS Program office, overseeing provision of $20 million of HIV services for two clinics, four pharmacies, and seven subcontractor agencies throughout Broward County. His next step was a five year role in the Statewide Medicaid HIV Disease Management program, Positive Healthcare, as the statewide Community Relations Director. Acting as a liaison with the six HIV Ryan White "Part A" planning bodies across six cities, he worked directly with various HIV service delivery systems of care throughout Florida. Joey then worked for Broward House for 5 years as the Director of Public Policy. BH is an AIDS Service organization providing the entire spectrum of services for clients: Housing, primary medical care, substance abuse rehabilitation, mental health, and social services for people living with HIV.
He also served four years as a member of the Florida Statewide Medicaid Advisory group. He has worked on various local, State, and Federal Pharmacy formulary panels and workgroups over the past 17 years, and developed a Ryan White Part A funded analysis of Pharmacy efficiency / effectiveness in an evaluation report for the Broward County EMA, comparing Florida EMAs for cost & utilization with the Florida ADAP in 2005.
A. Toni Young is Chief Executive Officer for the Community Education Group. She brings more than 25 years of experience in community mobilization, fiscal and personnel management and creating effective collaborative partnerships which meet the diverse needs of marginalized communities. In 1993, she founded NWAP, now Community Education Group (CEG) and has served as the Executive Director since its inception. Today, CEG continues to organize individuals and organizations at the grassroots level, empowering communities and building coalitions on issues associated with HIV/AIDS, women and the Black community.
Complementing her work at CEG, Toni has a long history of advocating for the coordination of services for women with HIV/AIDS and working with Black communities around HIV and other health issues in local, regional and national settings. As Community Co-chair for the San Francisco HIV Prevention Planning Council, she facilitated a group of 27 community and government representatives who were responsible for the allocation of more than $8 million in federal and state resources. Since her return to D.C. in 2003, Toni has served as the Chair of the D.C. HIV Prevention Planning Council, a vital role that allows her to coordinate efforts in this community.
Toni has also lent her expertise to numerous projects, including developing and presenting HIV/AIDS congressional testimony for the White House working group, and working with lead staff of the Health Resources Services Administration (HRSA) to develop the 1996 Ryan White application to states. She has also served on numerous federal panels and committees including the CDC Sterile Needle Committee, the CDC meeting on Woman to Woman transmission and the Ryan White Title I & II Review Committees. Toni has also successfully planned and executed three regional forums concerning Woman and HIV/AIDS as it relates to women's health for the National Women's Health Network (NWHN).
Today, Toni is leading efforts at CEG to expand the reach of the organization. Through the HIV testing training program, CHAMPS, CEG now has over 30 outreach workers in the field, six days a week, using 8 mobile testing units to educate, test and link to care clients who are hardest to reach. As well, Toni has taken the lead in developing educational materials that are used throughout the country, and promoting replicable models for community development that she has tested and proven.
In addition, Ms Young is in the process of replicating many of CEG's HIV/HCV and PrEP education and testing programs in Appalachia; specifically in West Virginia. Appalachia and West Virginia is experiencing a spate of overdoses triggered by in many cases heroin laced with either fentenayl or cardentinil. The cocktail of heroin and counterfeit synthetics have lead to a 364% in the overall rate of hepatitis among people in Appalachia.
An increase in the abuse of injectable drugs is one cause for hepatitis C infection rates to more than triple in four Appalachian states (one of them being West Virginia), according to a report by the Centers for Disease Control and Prevention (CDC). West Virginia leads the nation in overdose deaths on an almost yearly basis. Between 2011-2013 West Virginia's number of overdose deaths per 100,000 residents increased by 54 percent compared to 2007-2009 . West Virginia has the highest rate of fatal drug overdoses of any state and the highest rate of babies born dependent on opioids among the 28 states that report data.
CEG is has developed a tablet based enrollment tool for DC Alliance, Medicaid and Medicare along with HIV/AIDS, Substance Abuse, Mental Health, HEPc, cardiovascular disease, diabetes, and obesity. This will build on the outreach CEG currently conducts and folds into the goals of the Affordable Care Act to increase utilization of preventative care rather than urgent care.
CEG has lead efforts for National Women and Girls HIV/AIDS Awareness Day for the past 6 years. Develop community partners across the United State, developing campaign materials and creating the first national Spokesperson Ms. Vanessa Williams in 2012.
* Wiederspiel, Alex. Outside experts and gubernatorial campaigns disagree on Cole's drug plan. West Virginia Metro News. August 22, 2016. http://wvmetronews.com/2016/08/22/outside-experts-and-gubernatorial-campaigns-disagree-on-coles-drug-plan/ Accessed August 28, 2016.
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